The MSN for Children and Young People with Cancer have an ambition to have a ‘Once for Scotland’ approach to the collection of high quality data.
Access to high quality, accurate data is an essential part of good person-centred care and is fundamental to improving outcomes for people with cancer. The MSN developed, in partnership with NHS National Services Scotland an Enhanced Cancer Registry to collect an enhanced diagnostic, staging, treatment and prognostic dataset to inform clinical and research outcomes and drive improvement in services for children and young people.
Having access to high quality cancer data and intelligence will improve data sharing, including in real time, help drive improvements in care, quality health delivery, improvement programmes as well as performance management and research.